Thursday, December 6, 2018

Being a Coeliac sucks

Georgie and I were diagnosed with Coeliac disease over a year ago. I by accident and Georgie got tested purely because of my diagnosis.

Neither of us had (or have) any outward symptoms of the disease. Just the massive the damage gluten was doing on the inside of our bodies.

I suspect it's been  in my dad's side of the family for years. My Uncle Barry is a Coeliac and is the only other one in the family. However dad's brother and his father died of cancer. Untreated coeliac disease can lead to cancer, most commonly non Hodgkin's lymphoma. So potentially if they were silent coeliac's (no symptoms) like Georgie and I they would never had known anything was wrong.

Cross contamination seems ridiculous but we have to take it seriously. I have to have my own toaster, my own cutting board, my own butter. blah blah blah

I can't just grab something to eat when I'm out - no sandwiches, pies, hamburgers, hot chicken. I can maybe eat SOME sushi if they don't use mayonnaise and rice paper rolls (after checking what the meat was flavoured with). Even breakfast cereal is no longer an option.

Gluten is in everything, sauces, gravy, marinades, salad dressing, vegimite (FFS), hot chips, lollies/chocolates the list is fucking endless.

GF bread is SHIT,  some is manageable when toasted but it's still shit.

I hate that this life style has been imposed upon me! I had no idea getting something to eat could be so difficult -  home is ok, it's controllable, eating out is often frustrating and disappointing  - travelling and trying to find food is exhausting for the entire family!

To be honest I think Georgie manages it better than me, I'm still bitter as fuck about it :-(
Yes I know, it's not helpful....................I'm working on it

And to those people who say to me "it could be worse", Ï'm mostly gluten free" and "I like gluten free bread"

There is ALWAYS someone worse off then you, but it does not detract from how I feel.

Please don't compare your "MOSTLY GLUTEN FREE" self  to me.

It's easy to LIKE "gluten free bread" when you have the luxury of choice.

Sunday, October 28, 2018

A taste of snow Canada

Christmas in Old Quebec City 2017

Old Quebec City
Fairmont le Chateau, Quebec - Xmas lunch
We went to USA & Canada for Xmas 2017 with Georgie and Luke.We did Disney Land, and Universal Studios with Georgie and Luke before we split up to to meet again in Quebec.

We caught the train to Chicago and drove up. It snowed heavily which made driving interesting, scary as hell, enough to keep the kids quiet.

We stayed a few days in Washington before flying out of NY to Singapore for a week.

Despite the temp being -30° at times it was a beautiful holiday. 
So many wonderful experiences but the most magical was Xmas in Old Quebec City. It snowed so hard xmas day we played in snow up to out chins! It was something right out of a story book.
Universal Studios

Central Park NY

On our way to Quebec, in the french quarter of Canada
Niagara Falls Canada

Canandaigua - BB guns from Walmart

Wednesday, May 23, 2018

Mr & Mrs de Vries 02/07/2016

So proud of Georgie and Luke! A perfect and beautiful wedding - exactly what they deserved xxxxxx

Thursday, May 3, 2018

Connor & Harrison AFL 2018

Connor front left, Harrison front right

Welcome 2017

We spent the beginning of 2017 with our friends Nicky Damien, Sally and Glen in Tasmania. We also travelled the Great Ocean Rd. Despite it being January and Summer time it was surprisingly cold but stunningly beautiful.

One more chance

I had a dream last night. It's similar to a book I read years ago by Mitch Albom: For one more day.

I was sitting around a table with a group of people - in the group was dad's twin brother Gordon and Nanna Ward (dad's mum) both of whom died a long time ago.

In the dream I was very surprised they were there because I knew that they had passed away. I was telling people this and they kept saying they couldn't be because they were "right" there! I started taking photos with my phone showing the others they weren't in the picture (and they weren't).

Gordon died at the table, it was very vivid. It was then that I realised that I was so busy wasting my time with trivial stuff that I  had lost my chance to actually talk to Gordon. For some reason I was given an opportunity, one last time to talk to these two people and I'd blew it with Gordon.

I started dancing with Nanna and I told her I loved her. I felt warmth and so much love. After a while she walked away out of my sight. It was so beautiful.

I don't have any unfinished business with either of them. I was about 9 when Nanna died, kids don't talk about love at that age, we just love. Gordon died when I was about 16.

I wrote this down the very next day but it actually happened a while ago. It was an incredibly powerful dream and the message is clear! Thinking about it still brings me to tears.

Wednesday, May 2, 2018

Tiime out

Last year Arthur and I spent 4 days at Berkly River Lodge. It's a stunning Resort on the Kimberly coast line and is only accessible by plane. Everything was included in the price including tours etc. It really was breathtakingly beautiful.


Gracie's graduation 2016

How beautiful is this girl!
Congratulations Grace Elizabeth Hill

Tuesday, May 1, 2018

Masters Games 2016

In October 2016 a group of us drove down to Alice Springs for the Masters Games to play netball. We went via Kings Canyon (stunning), the Olgas and Ayres Rock. The whole trip was so much fun. I had never played in a sport where I actually had a uniform. So at 48 years old for the first time in my life I put on a uniform and played in a competition with a team - a bloody awesome team. We didn't win, but it didn't matter - it was magic 

Georgie's Hen's High Tea June 2016

With all the preparation for the wedding just about finished, we had Georgie's Hen's party at the beautiful East Point beach. It started out quite proper, but if you look closely in back ground you will see the eskies..............and that all I've go to say about that!!

Wednesday, May 11, 2016


In February I spent a few days in Tasmania with my good friend Nicky who had the audacity to move there with her family nearly a year and half ago - I miss her terribly!

I went down with Nic and Sally. The four of us had a wonderful time touring some really beautiful places and spending quality time together that we had all been missing - nourishment for the sole

Richmond Bridge - oldest bridge in Tasmania built 1823

Their house overlooks Blackman's bay - such beautiful views